Life-Limiting Illnesses – When to Call Hospice

A life-limiting illness is an incurable chronic disease or condition that no longer respond to curative treatments.

Examples of a life-limiting illness include:

  • Alzheimer’s Disease or Dementia
  • Stroke
  • ALS
  • Parkinson’s Disease
  • Heart Disease
  • Pulmonary Disease
  • Liver Disease
  • End-stage Renal Disease
  • AIDS
  • Cancer

A life limiting illness, coupled with symptoms below, could be indicators of decline and hospice eligibility:

  • Frequent hospitalizations, ER visits, or visits to the physician within the last six months
  • Progressive weight loss (with consideration to weight gain factors such as edema, when applicable)
  • Decreasing appetite
  • Dysphagia or difficulty swallowing
  • Increased weakness or fatigue
  • Decline in cognitive status or functional abilities
  • Increasing assistance needed with Activities of Daily Living (ADLs)
  • Increasing pain or increasing difficulty in controlling pain
  • Increasing dyspnea or shortness of breath
  • Oxygen dependency
  • Reoccurring infections
  • Ascites
  • Increased nausea and/or vomiting that is difficult to control
  • A desire to forgo future hospitalizations
  • A request to discontinue treatment
  • Recurrent or frequent infections
  • Skin breakdown
  • A specific decline in condition

If you or a loved one has a life-limiting illness and are experiencing any of the above symptoms, consider speaking to your physician about hospice services. You can also call Hearts for Hospice & Home Health, and one of our team members can help guide you through the process of requesting hospice through your physician.

The Grief Survival Kit

Let yourself grieve. It’s important to let yourself take this roller coaster ride and feel your emotions rather than suppress them. No matter how hard you try to bury those feelings of grief, they will continue to resurface, and you won’t be able to truly move on. Start the healing process by giving into grief.

Lean on friends and family. Your friends and family expect you to be upset. While they may not always know the right things to do or say, they do want to be there for you even if it’s just to listen or offer affection. Never feel too proud or embarrassed to lean on them in this time of need.

Join a support group – online or offline. Whether you find a group through social media or in person, support groups provide ways to talk and listen to others who are in the same position and truly understand what you are going through.

Focus on the positive aspects of your life. The loss you are experiencing could feel like the worst thing that’s ever happened to you and no one can change your mind. Despite this, what you need to do is reflect on all the good aspects that continue to bless your life and are worth pushing through the grief.

Keep yourself busy. Become more involved, go on a trip, try something new – participate in activities you enjoy and that can keep you focused on something other than your grief. Redirect your energy into doing things you’ve always wanted to do but never prioritized.

Breathe. If ever you find the grief to be too overwhelming, take a few deep breaths. The body’s breathing becomes shallow when we are feeling tense or stressed, resulting in insufficient oxygen to the body. This adds to the stress you are already feeling, so focusing on conscious, deeps breaths helps you relax and breathe normally.